Spina Bifida is the most common permanently disabling birth defect in the United States. It occurs when a baby's spine fails to close properly during the first months of pregnancy. This causes full or partial paralysis and on-going medical challenges. However, most born with Spina Bifida can expect to live happy and fulfilling lives. More Facts about Spina Bifida...
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The Spina Bifida Association of Cincinnati, Inc. has compiled a list of websites that you may find helpful in learning about Spina Bifida and its related issues.
Spina Bifida Association of America
www.sbaa.org
Spina Bifida Clinic at Children’s Hospital Medical Center
www.cincinnatichildrens.org/spina-bifida
Children with Spina Bifida Resource Page for Parents
www.waisman.wisc.edu/~rowley/sb-kids
Family Village, a global community of disability-related resources
www.familyvillage.wisc.edu
MOMS Management of Myelomeningocele Study
www.spinabifidamoms.com/english/about.html
YouTube video, “Management of Myelomeningocele Study”
NICHCY Spina Bifdia Information Page
www.westworld.com/~barbara/index28spinabif
Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
www.cincinnatichildrens.org/…special-needs/resources
Ohio Department of Health Help Me Grow Program
www.ohiohelpmegrow.org
Hamilton County Board of Mental Retardation and Developmental Disabilities
www.hamiltonmrdd.org
Child Wellness Fair
www.childwellnessfair.com
Hamilton County Arc Family Support Services Program
www.archamilton.org/family_resources3.htm
Cincinnati Children’s Hospital Medical Center Family Support and Education Calendar
www.cincinnatichildrens.org/…/ddbpcalendar.pdf
Children with Spina Bifida Online Discussion Groups
www.waisman.wisc.edu/~rowley/sb-kids/Online.html
Spina Bifida Central
www.health.groups.yahoo.com/group/spinabifidacentral
Spina Bifida Mom Blog
www.spinabifidamoms.blogspot.com
SB Parents Listserv
www.sbaa.org/site/…/SB_PARENTS_LISTSERV.htm
SB List
www.waisman.wisc.edu/~rowley/sb-kids/sb-list.html
Youth and Adult Alliance Listserv
www.sbaa.org/…/Youth_and_Adult_Alliance_YAA_ListServ.htm
The Hydrocephalus Association
www.hydroassoc.org
What is Chiari Malformation
www.spinabifidainfo.nl/chiarimalformatieeng.htm
Neurosurgery Today, Chiari Malformation
www.neurosurgerytoday.org/what/patient_e/chiari1.asp
Meningomyelocele-Pediatric Urology Information
www.pediatricurologyinformation.com/…topic.html
EMedecine-Lower Limb Orthotics
www.emedicine.com/pmr/topic172.htm#section…
Non-verbal Learning Disorder
www.nldline.com/
Byron Rourke - Non-verbal Learning Disabilities
www.nld-bprourke.ca
Vineyard Community Church Free Respite Evenings
www.vineyardcincinnati.com/vcc.php?id=1291
Blaze Sports Programs
www.ci.cincinnati.oh.us/crc/pages/-9247-/
Butler County Challenger Baseball
www.bcchallenger.org
CCHMC Healthworks!
www.cincinnatichildrens.org/healthworks
Cincinnati Icebreakers Sled Hockey
www.wix.com/sledhockey/Cincinnati_sledhockey
Cincinnati Recreation Commission
www.ci.cincinnati.oh.us/crc/pages/-5721-/
Cincinnati Therapeutic Riding and Horsemanship
www.crh-horse.org
Cincinnati Top Soccer
www.cincytopsoccer.com
Easter Seals Camp KYSOC
http://www.cardinalhill.org/…/kysoc
Fishing Has No Boundaries
www.fhnbinc.org/cincinnati.html
Fun and Fit Recreation Directory
www.cchmc.org
Hamilton County Special Olympics
www.hcso.info
Leap Beyond Therapy
www.leapbeyondtherapy.com
Midwest Cheer Elite
www.midwestcheerelite.com
Miracle Dance Theater - wheelchair ballet
www.miracledance.com
National Center on Physical Activity and Disability
www.ncpad.org/
Perfect North Slopes - adaptive snowsports
www.perfectnorth.com
Recreation Unlimited Camp
www.recreationunlimited.org/
Stepping Stones Center
www.steppingstonescenter.org
Summer Camps for Children with Special Health Care Needshttp://www.cincinnatichildrens.org/visit/support/camps/
TAASC: The Adaptive Adventure Sports Coalition
www.taasc.org
Project SEARCH at Children’s Hospital Medical Center
www.cincinnatichildrens.org/svc/alpha/p/search/default.htm
Goodwill Industries International, Inc.
www.goodwill.org/page/guest/about/whatwedo
Bureau of Vocational Rehabilitation
www.rsc.ohio.gov/VR_Services/BVR/bvr.asp
Ohio Legal Rights Service
www.olrs.ohio.gov/asp/pub_VocRehabMV.asp
Healthy and Ready to Work National Resource Center
United HealthCare Children’s Foundation
http://www.uhccf.org/aboutus.html
Building Blocks Foundation
www.buildingblocksfoundation.com/
Ambucs
SBA Legislative Action Center
http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2663999/k.6249/Legislative_Action_Center.htm
Americans with Disabilities Act
www.ada.gov
Disability Information
www.disabilityinfo.gov
Federal Transit Authority
www.fta.dot.gov
United States Dept. of Agriculture
www.mypyramid.gov
Cincinnati Nutrition Council
www.nutritioncouncil.org
USDA Food and Nutrition Information Center
www.nal.usda.gov/fnic/
The Center for Universal Design
www.design.ncsu.edu/cud/