Spina Bifida is the most common permanently disabling birth defect in the United States. It occurs when a baby's spine fails to close properly during the first months of pregnancy. This causes full or partial paralysis and on-going medical challenges. However, most born with Spina Bifida can expect to live happy and fulfilling lives. More Facts about Spina Bifida...
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The Spina Bifida Association of Cincinnati offers a wide range of programs and services to meet the needs of individuals and families living with Spina Bifida.
Delivers education and information packets into the hands of families at five milestones:
Prenatal diagnosis, Birth, School-age, Preteens, and Older Adolescence
(3) nine-week tele-programs are offered each year for a diverse group of adults with Spina Bifida from around the country. They explore strategies for success in transitioning to and maintaining a healthy and productive lifestyle over the phone. Guest speakers will supplement the tele-program with "Special Topics" throughout the year.
Connects experienced parents with those facing new challenges in caring for a child with Spina Bifida.
The Young Family Support Group meets monthly over pizza to share information and experiences in an informal setting. Children and siblings are welcome.
Mylar balloons are sent to the room of children in-patient at Cincinnati Children's Hospital Medical Center to brighten their day and wish them a speedy recovery. Meal tickets are also available for their parents to order from the room meal menu.
Scholarships are offered to encourage participation in the following:
Camp or community recreation programs, primary school education support, national conference attendance, post-secondary education, and adapted driving classes or car modifications. Grants are also provided on a limited basis to community programs serving individuals with Spina Bifida.
The SBAC is collaborating with the Therapeutic Recreation Division of the Cincinnati Recreation Commission to offer adapted strength training adults with Spina Bifda.
The bi-annual regional conference aims to enlighten all members of the family about issues surrounding their health and well-being.
Spina Bifida Family Camp is an opportunity for adults and children with Spina Bifida and their families to experience a weekend camp in a fully-accessible environment.
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